Adults with congenital heart disease need specialized care
Not all heart problems develop as you age. Some, known as congenital heart disease or congenital heart defects, are present at birth. These birth defects affect the heart walls, valves or major blood vessels and can disrupt how blood flows through the heart to the rest of the body. As a result, some people with congenital heart disease can develop other heart conditions, such as congestive heart failure or arrhythmia.
If you have congenital heart disease, treatment depends on what type of defect you have and how it affects your health and quality of life. Regular visits with a cardiologist can help identify any changes in your condition and ensure you receive the care you need to thrive.
Congenital heart disease symptoms
Symptoms of congenital heart disease can often include:
- Swelling, such as in the feet, ankles or hands
- Shortness of breath
- Fluid retention
- Irregular heart rhythms or palpitations
- Dizziness
- Bluish fingernails, lips or skin
What causes congenital heart disease?
The most common type of birth defect, congenital heart disease, occurs when a baby’s heart doesn’t develop properly during pregnancy. Doctors don’t always know why some babies’ hearts form defects, although genetic changes, some of which can pass from parent to child, may contribute.
Risk factors for having a baby with congenital heart disease include:
- Family history of congenital heart defects
- Certain medications
- Diabetes and other health conditions, such as rubella (German measles)
- Certain genetic disorders
- Alcohol use or smoking during pregnancy
Treatment for congenital heart disease
No two cases of congenital heart disease are alike. Your heart and vascular team will create a treatment plan just for you.
If you have a mild form of congenital heart disease, you may not need treatment. Instead, your cardiologist may recommend regular checkups to ensure your heart functions well and symptoms aren’t affecting your quality of life.
No matter what your treatment plan entails, it’s important to follow it closely. Take your medications as prescribed and don’t stop or start medicine without talking to your physician. Keep all checkup appointments so your healthcare provider can track how your treatment plan is working. Make healthy lifestyle changes to help protect your heart and complement your treatment. Finally, if you notice any new or worsening symptoms, tell your physician right away so you can work together to address them.
If you have concerning symptoms or the heart defect poses a risk to your health, a variety of treatments are available, including:
- Medications to treat problems related to congenital heart disease, such as high blood pressure, heart failure and arrhythmias (irregular heart rhythms)
- Cardiac catheterization to repair certain heart defects, such as simple holes in the heart
- Open-heart or minimally invasive surgery to repair or replace a heart valve or correct your congenital heart disease
- Heart transplant surgery, which may be an option depending on your condition and the severity of your illness
Diagnosing a congenital heart disease
Some people with congenital heart disease are diagnosed as babies or children. Many people, however, don’t learn they have a heart defect until they’re adults.
If your physician suspects a heart defect, they’ll start by asking you about your health history. They’ll also perform a physical exam to check for symptoms of congenital heart disease, such as abnormal heart rhythms or murmurs.
If your physician suspects genetics could play a role in your diagnosis, they may recommend genetic testing to find out whether a gene mutation could be the cause.
To gather more information, your physician may order tests, such as:
Find a location near you
We help you get care at a location that fits your needs. We offer several locations for congenital heart disease care, including specialized centers in North and Central Texas.
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